- Here's my article on the bill.
- Here's the current language in the House with off-sets (who knew you could save 444 million by not funding erection pumps via medicaid?).
- Here's a piece saying that Senator Casey (D-PA) has agreed to the House language.
The proposal's cost has been scaled back from an estimated $20 billion over 10 years. Clarifying that someone must be diagnosed with the disability by age 26 to qualify, and limiting annual contributions to $14,000, trimmed that cost to $2 billion over a decade.The question I am trying to get answered (and have some hope of getting answered) is this:
1. The bill just "allows" states to set up ABLE Accounts? Will we then have to lobby each state to do it, or is it simple enough that this shouldn't be an obstacle.I expect to have this question answered by the end of today.
2. Why does someone who has a traumatic brain injury at age 25 get access to ABLE and not someone who gets the same injury at age 27?I get it that it will make the program more expensive. But if ABLE is good policy, then it's good policy. We have to fight these disability hierarchies that will help my son and those like him, but leave so many other people stranded.
UPDATE: And answers
1. A spokesperson for a congressional rep said that it should be fairly simple to get the 529 accounts set up, as states already run the other 529s. But let me know if your state doesn't carry through.
2. It's just money. Too many reps in the House (I am assuming GOP but my source avoided partisanship) wouldn't vote for it unless it was cheaper, so they came up with the age 26 based on the ACA use of age 26 as a way to make it cheap enough to pass.
So Congress is doing a good thing, it's not a big thing, it's going to be nice for wealthier families with kids with disabilities. Poor people won't be helped, as they don't have the money to save. People who become disabled later in life won't be helped. Still, a small good thing is, I guess, good.
Forbes questions how good and notes that special needs trusts do a lot of this work already. ABLE is better though. At any rate, they are voting more or less now, as I write.
ABLE has led me to create a new mantra - Fight disability hierarchies. And so I shall.