Tuesday, May 31, 2016

Early Science Fiction (A Medievalist on the Chemical Wedding)

Last week The Guardian had a piece on the "first science fiction book," an alchemy fantasy from 1617. I haven't read The Chemical Wedding (though there's a Kickstarter, now funded with 60k, that's producing a new edition), but I was instantly skeptical of the "first" claim, so took to Twitter to ask for ideas of precursors.

Juliet O'Brien, at Meta Medieval, has written a long response, complete with the original article, many of the relevant tweets (here as a .png and here with a link to my starting tweet), a link to the forthcoming Medieval Science Fiction, and then her own reactions, starting here:
My own stirrings are not as an expert on medieval science fiction.
They are in part the reaction of a medievalist: exposed like all medievalists to daily ignorance and ignominy, to the horrors of our field’s abuse through the perversion of “neomedievalism,” through which “medieval” has become a pejorative in so much common usage. We’re sensitive to that sort of thing. It hurts. And we feel responsible towards the medieval, protective, with a duty of care towards that which we care about and that cannot protect itself. As people who work with and in history, we’re hypersensitive to the dark side of modernity and the blind worship of modernity for modernity’s sake: a vapid vigorous cult of speed, fashion, and shiny newness that’s been seen before, most memorably in the rise of Fascist movements a mere century ago.
This is very much where I stand as a medievalist. When someone claims  a"first" status just after the Middle Ages, I am immediately suspect and defensive, because as a historian I pursue continuities over radical over-determined periodized change (I'm a lumper, not a splitter).

It may be possible to come up with a definition of "science fiction novel" that only The Chemical Wedding and subsequent books fits, but it doesn't involve "science" or "fiction" or "novel" putting the three together. O'Brien looks at the medieval meanings of all three words, and as always, go read the whole post!
So for any given time, place, and culture: “science fiction” would be made-up stories, dependent on imagination, built on and out of contemporary cutting-edge knowledge, and building an alternative world in which that knowledge has been pushed hypothetically, futuristically, beyond its contemporary bounds. This definition avoids limitations of exclusive cultural normativity, to open up an idea inclusively. It shouldn’t detract from what makes European and North American science fiction of the modern era; just as it doesn’t currently exclude later 20th- and 21st-century writers and writings from elsewhere: Russia, China, Indonesia, Nigeria, Mexico, First Nations here in North America, Australia, Japan, … In all cases, we’re looking at longer stories that work around technologies that are a step ahead, a day away in the future (ex. Roman de la Rose); and travel to other worlds (ex. the Alexander romances), where wonders beyond our understanding may be observed, from more technologically-advanced cultures: automata and AIs in Floire et Blanchefleur—a popular pan-European hit—and in exotic Eastern scenes in the earliest Western European medieval vernacular romances, the Romans de Troie, Thèbes, & Enéas (in a piquant premodern-postmodern take on Orientalism).
The latter are already sources of wonder—sometimes downright made-up and stretching the bounds of imagination into the comedy of credulity—and may be wonders of alien cultures, such as in The Travels of Sir John Mandeville and other travel literature, and in another form of SF imaginative writing: maps. Meanwhile, the more obviously “other” medieval aliens of faery, and other places or worlds, populate Chrétien de Troyes’s romances and their kin in the Arthurian corpus; their very name related to fiction, their glamour and magics in the borderlands between advanced natural sciences and the unnatural. The distinction between alchemy and chemistry will remain to some extent unstable well into modernity, with magic as the border, through to the time of that other Crowley… And what should we do with travel to other other worlds like the world of the dead? As toyed with so subtly in the location and dislocation of Gorre in Chrétien’s Lancelot?
A final other-worldliness and “science”: dream visions, and the supernatural paranormal otherworldly othertimely knowledge beyond of religious and spiritual writing, from saints’ miracles to ecstatic transports. Allegory as a form of knowledge that works through imagination, hypothesis, thinking forward and outside and beyond. Exemplary cases: the Roman de la Rose again; the writings of Machaut and Froissart; and at the other end of the medieval, some 5th century allegorical works: the Comentarii in Somnium Scipionis of Macrobius, and Martianus Capella’s De nuptiis Philologiae et Mercurii. The latter, much read over the next thousand years, might perhaps have some influence on Johann Valentin Andraea’s Chemical Wedding.
Consider what we think of most naturally as the “science” in “science fiction” from an outsider’s point of view. As a system of knowledge, “science” in the 19th, 20th, and 21st centuries would seem as lofty, venerated, and mostly unknown to most of the population as Christianity and Church doctrine were to our parallels in 12th- to 14th-century Western Europe. A cult that’s central to a culture and to what defines it; mediated by a priesthood; but with populist and popular other expressions; and as a source for creative “… and what happened next?”
Finally: I agree with O'Brien that the need to be first, the need to define YOUR FIELD, YOUR PERIOD, YOUR BOOK as first, as devoid of contact with that which came before, is an epistemological problem. Some of this stems from academia itself - we reward "firsts" and smile politely at "continuity," "incremental change," or same-as-it-ever-was.

You don't win big prizes for locating a lack of change.

Friday, May 27, 2016

Neurodiversity - It means everyone

There's a newish piece in Pacific Standard, a magazine for which I write, that criticizes the neurodiversity movement as being focused on a tiny group of super high functioning autistic folks. You can read it here

"The Autistic Academic" blog has written an excellent response. You can read it here. Please link to other responses in the comments!

A key quote [emphasis author's]:
Like every other anti-neurodiversity-movement piece I have read to date, this one gets the fundamentals of the neurodiversity movement very, very wrong. So wrong that it doesn’t even function as a rebuttal of the neurodiversity movement – it functions as a rebuttal of a straw movement inside the author’s head. This article is Gwendolyn Kansen talking to Gwendolyn Kansen.
Here’s what I mean.
“First off,” Kansen writes, "many of us aren’t high-functioning enough to benefit from depathologizing autism. The neurodiversity movement doesn’t have much to say about lower-functioning autistics, who are decidedly less inspirational."
I’m not going to ask what Kansen intends to mean by “high-functioning.” The neurodiversity movement has exactly the same thing to say about “less inspirational” autistics that it has to say about “more inspirational” ones: Autistic people are human beings who deserve to have their full set of human rights respected.
The piece effectively moves through Kansen's claims and keeps just repeating the refrain - human beings, human rights

Anti-neurodiversity rhetoric tends to say that it only serves a small segment of people with intellectual or developmental disabilities. This is entirely wrong. The fundamentals of the neurodiversity movement focuses on universalities and breaking the high/low functioning discourse.

As always, please click over and read the whole thing.

Wednesday, May 25, 2016

Mercy Killing Watch: Article Explores Murderer's Justification for Killing Disabled Daughter

I need to read more murder journalism. Does non-disability-related murder spend as much time exploring how killers justify their crimes?

Here's WaPo on Bonnie Lilitz, who killed her daughter:
Bonnie Liltz, it seemed, had reached a desperate moment.
At home in a Chicago suburb late last spring, Liltz penned a final note to her family, authorities said.
“I am so sorry to put you all through this but I can’t leave my daughter behind,” she wrote, according to court documents cited by the Chicago Tribune. “I am having difficulty breathing now,”
She added: “If I go first, what will happen to her? I don’t want her to live in an institution for the rest of her life. She is my life.”
This is the lede. Notice how from the opening, it's centering the mother's justification for her horrific acts.

Caregiver murder is my next project (not starting until Fall, really). But I'm watching.

From 2014: Me on London McCabe's death and the need for victim-centered narratives.

Tuesday, May 24, 2016

Adventures in Universal Design: A Farewell to In-Class Tests

I have decided to stop giving in-class tests under any circumstances. Here's my essay, from the Chronicle:
I’ve been inching away from the blue book for years, but it’s time to go cold turkey and match my praxis to my principles. Whatever pedagogical gains the in-class test might bring — and I’ll argue they are few and increasingly less relevant — I can no longer justify forcing people with disabilities to disclose their conditions in order to receive basic test-related accommodations....

It’s become routine, rather than rare, for students to begin the semester by presenting their professors with documented requests for accommodation.
That it’s become routine is great but far from perfect. Not only do students have to disclose disability to their professors —who are no more immune to ableism than to any other sort of bias — but the most common form of accommodation extends the disclosure to classmates. Many students with invisible disabilities (such as anxiety disorders or ADHD) require quiet rooms and extra time to work on a test. I’m thrilled to provide both. On the other hand, when the whole class gathers to take an exam, with one student conspicuously absent, everyone notices.
If there were important benefits to taking HISTORY classes in the room, then the accommodation model might be relevant. There aren't, I argue, so I'm done.

That doesn't mean you have to be done, but I guess I would like you to think about it.

Monday, May 23, 2016

Close the JRC (Submit Comments Today!)

Did you know it's legal for certain schools to apply electric shocks to autistic children as a form of "therapy?"

It is. It's horrific. After years of work, the FDA is considering banning it. You can submit your comment here.

Shain M. Neumeier, who has been working on this for years, had an op-ed on the torture - and the Judge Rotenberg Center that applies it - in USA Today.

How is this legal?" This is one of the first questions people ask when they hear about what happens at the Judge Rotenberg Center, a residential school for disabled children and adults just south of Boston. For decades, JRC has worked off a treatment model of reward and punishment — punishing its clients severely when they misbehave. In particular, JRC is the only program of any kind in the United States to use electric shock as a form of behavior modification.
This form of punishment is very different from electroconvulsive therapy, which is used to treat depression; it’s much more like the use of a shock collar in training a dog. JRC aides use two different types of remote control devices to shock students on their arms, legs and torso in response to dangerous or potentially dangerous behavior. The weaker of the two is 15 times more powerful than an actual dog training collar, and has been described as feeling like being attacked by a swarm of wasps. The devices have been known to cause first-degree burns and to occasionally malfunction, shocking someone other than the intended target or activating completely unintentionally.
Please read, share, comment, and get this practice banned.

Friday, May 20, 2016

Christopher Bauer: Tasered while Not Hearing (Ear Buds)

I generally start my presentations on police use of force and disability by talking about a deaf man shot in the back. I like to end (or at least end the section), by talking about non-white men killed while wearing ear buds, talking on cell phones, or not speaking English. It's a way to point out that one major issue - the issue that endangers people with disabilities more than any other - is when police decide to escalate based solely on non-compliance, absent any threat indicators.

I call it, when it comes to policing, the #CultOfCompliance.

Here's the case of Christopher Bauer:
On January 22, 2008, then Officer Mitchell responded to a false burglary alarm and assumed the first person he saw was the suspect. But Christopher Bauer was just an innocent bystander walking home with his hands in his pockets and listening to his iPod. From his moving vehicle, without warning or provocation, Mitchell tased the oblivious teen in the back of the head, causing him to fall forward onto his face. Mitchell then cycled the TASER a second time on the unconscious victim. Bauer suffers permanent neurological complications from the incident, including memory loss. Mitchell told Bauer he tased him because he refused to comply with his command to stop.
Mitchell’s statements at his disciplinary hearing offer a window into his highly prejudicial, preemptive thinking. Note the hypothetical thinking (emphasis mine):
Officer Mitchell stated that if the hold up alarm was in fact a “good alarm” this personwould be a likely suspect or witness. Officer Mitchell felt it imperative to stop this person and identify him in case the alarm turned out to be a real robbery.

Officer Mitchell further stated that if the hold up alarm was “good,” in his experience, hethought the suspect would most likely be armed with a weapon, probably a handgun. Officer Mitchell stated that he decided to use the Taser to stop Mr. Bauer without warning him because Bauer might be armed and might try to avoid apprehension. Officer Mitchell also stated that he wanted to stop Mr. Bauer before he reached a position in the parking lot that might endanger the lives of other civilian pedestrians.
Captain Stephen Luebbe found Mitchell used excessive force and did not give Bauer the opportunity to submit to arrest. But his statements went beyond the issue of force to challenge Mitchell’s logic. He found Mitchell’s extreme application of the precautionary principle to be in dereliction of his primary responsibility to investigate the alleged crime:

Police Officer Andrew Mitchell used more force that was reasonably necessary to stop and detain Christopher Bauer Jr. Whether or not Mr. Bauer was wearing earphones and listening to an IPOD is not important to this hearing. Officer Mitchell was not justified in the use of force to stop anyone. There was no confirmed crime to investigate. Officer Mitchell’s primary responsibility, as first car on the scene, was to respond directly to Jersey Mike’s Restaurant to investigate and determine the validity of the alarm. In doing so he would have discovered the alarm was false and no other action was necessary. Had the alarm been “good” as Officer Mitchell feared, he would have been in a position to render aid to victims, obtain and broadcast a description of the suspect, protect the crime scene, and collect evidence.
The page goes on to collect a news report and some documents on the case. It's a classic example of, as I see it, the worst kind of decision-making and threat-assessment that endangers people.

Bauer's case is collected here on a page dedicated to the death of David "Bones" Herbert, who was told by one police officer to bring over his knife, and shot by another officer for showing a knife.

Thursday, May 19, 2016

Transphobia and the Middle Ages

Every year, Western Michigan University, in Kalamazoo, hosts about 3000 medievalists for a giant, sprawling, conference that I call MedievalCon. It has its significant academic context, but it's also embraced seriously fannish elements (or had them thrust upon it).

On Saturday nights, there's a panel hosted by the "Pseudosociety," in which academics deliver humorous satirical papers on invented manuscripts or whatever. Honestly, I don't know. I've been to one paper and it involved some nice elderly Irish lady making fun of "student howlers," or errors students write on their exams, and I've never really been into that kind of humor. Instead, I tend to plan a very nice dinner with friends.

This year, alas, Pseudosociety hosted two papers that were transphobic. I don't have details. I am not interested in parsing intent or whether they were really transphobic (on a listserv, a far-right-wing former prof of mine tried to make snide comments about Greek origins and changing the meaning of the word "phobia." A smart person responded, "Really, what did your Greek teacher say about xenophobia," and the far-right-wing former prof stopped talking).

What I can offer is this: An essay by MW Bychowski: "Genres of Embodiment: A Theory of Medieval Transgender Literature."

The Intro:
I am speechless. I have lost my power to speak. Last night not one but two papers were given with hate speech, transgender slurs, that use transgender to belittle medieval castrates and medieval castrates to belittle transgender. Already the next morning, the debates begin: hate speech v. free speech, ignorance v. consequence, a sense of justice v. a sense of humor. The effect of making us funny is that we are not taken seriously, we are not listened to when we speak, and we can't tell our stories. These attacks have power because they do not occur in a vacuum. Their words take force and meaning because of medievalists who believe that gender variant people don’t belong in medieval studies. Their words take on the force and meaning of laws barring trans persons from public bathrooms; a necessity to learn, teach or attend conferences. Their words take on the force and meaning of those giving women pepper-spray to use against trans people, threatening to beat us, and planting ideas in the head of a 16 year old who recently shot a local trans woman. People have asked me to say something about this. I know they want me to make sense of this; to find some way to make things better.

Now, I am speechless and I have no pardons to give; yet I come to this congress on medieval studies because my conscience leaves me no other choice. I come here because 48% of transgender women attempt suicide, because last year doubled the average number of transgender homicides, because parents bury them in clothes and names that contradict their gender identity, erasing all trace of their transgender lives. I sit with my countless dead trans friends and family looking for something to say but I have no words. So I listen. I listen to graves, the ruins of past trans lives, as they whisper to each other. They speak in many tongues from many places and many times. I hope if I learn to understand the dead and discarded trans lives that they might teach me words to say and stories to tell. I come to medieval studies because it is here that we learn to speak the language of the dead from the dead themselves. I come to medieval literature and history because we need their trans stories to make meaning out of our deaths and silences.
From there, MW dives into medieval literature, focusing on the Pardoner, first, then expanding to more general theories of medieval transgender literature and why it matters. She concludes:
Conflict is intrinsic to narrative and embodiment. It is not an over-reaction for a transgender medievalist to see the larger war and dangerous threats implicit in what may be pardoned as playful jabs. Yet the power of our oppressors can be used against them and our vulnerability can work for us. By silencing us so publicly, you are drawing others to hear our stories. By sending more of us to our early graves, you are adding to the cacophony of ghosts whispering in the machines of our destruction. By deconstructing our bodies, you reveal the maps for reconstruction written in our scars and sinews. Conflict comes with cost and we are paying it in the lives and stories of our transgender family. But one day that bill will have to be paid. For once we learn to listen to the transgender stories of the dead, each seemingly silent gravestone and medieval text will come alive with the call for justice.

Wednesday, May 18, 2016

Adventures in #MedievalTwitter - Racists and Swans

I was going to post this yesterday, but was too sick. Below is a tweet from former graduate student in medieval literature, responding to a petulant tweet by a racist UKIP (right-wing English political party) about an actress of color playing Queen Margaret of Anjou.
Here's good coverage of the whole affair by The Independent, including an interview with Le Chevalier (with whom I have also corresponded), saying:
Chevalier au Canard' wrote afterwards about how in the 21st century it's representation rather than medieval misappropriation that matters:

If I'd been able to complete my PhD, it would have been about exactly this - myth solidifying into history, then liquefying into myth again. Everywhere you think there is solid 'history' to lean on, it falls out from under you.

It's wrong to try and dictate what roles black actresses can play, whatever the context - but this guy decided to do it using an image from a manuscript I've written half a PhD on, unluckily for him. I thought it was a great opportunity to show that the sources we rely on to imagine a golden age of pure "historical accuracy" are often anything but.
As ever, the important thing is purpose - it's not misuse of medieval stuff that matters, it's attempting to deny work to a black actress.
Le Chevalier is handling her sudden twitter fame with good grace and a continued fine sense of wit. It's been a pleasure to watch.

There were, of course, some similar backlashes surrounding Hamilton, in which the founding fathers of American history were re-imagined as people of color. Not to mention Black Hermione.

There is, of course, a long history of experimenting with race and, for that matter, gender, in casting of Shakespeare (from which this Margaret of Anjou is drawn, more or less). As many tweeters pointed out, the earliest actors playing Margaret, for that matter, would have been male. I find the idea of Queen Margaret - a French queen tasked with defending the House of Lancaster, as her husband flounders (perhaps due to mental disability) - being cast as a Jewish/Nigerian actress, to be an interesting move for many reasons. Her identity in the plays (I haven't seen this BBC show) is very much structured around her foreignness to England, as I recall them, and so marking that in ways other than a fake French accent seems like a sharp approach.

ICYMI, here's an interview I did around race and representation in medieval fiction.

What's going on here, of course, is yet another proof that representation really matters. The UKIPper knows it, which is why he wants to keep the memory of medieval Europe lily white. As experts, we don't have to let him get away with it.

Monday, May 16, 2016

Baseball and Brothers - Good Journalism on a Celebrity and a Disabled Sibling

The celebrity with disabled sibling genre of story tend to be pretty awful. The celebrity is asked about their sibling and, in response, the celebrity says things like overcome, inspiration, and other usual platitudes. This is partially because that's how we've learned to talk about disability, partially because celebrities sell clicks and so interviewer isn't really that interested in the disabled individual as a person, and partially because cliches are safe (as Bull Durham taught us).

Adam Newman, however, directed me to this story about a young player for the Dodgers and his older brother, Champ, who has Down syndrome.

This is a story in dialogue, with both men given equal time to talk about their relationship. The picture that emerges is meaningful reciprocity with some depth (especially given the format). Champ talks about his relationships with baseball players, his job, his aspirations, and his thoughts about Down syndrome. It's a really nice model of what's possible, especially nice to see in this context.

Friday, May 13, 2016

EVENT: Live interview with Ada Palmer at her Book Launch, 5/16, 57th St. Bookstore, Chicago

Next week, I'll having a conversation with the brilliant Ada Palmer about her debut novel, Too Like the Lightning (from Tor). Her scholarship on Renaissance reception of Classical knowledge is impeccable, but she's also the author of a complex, innovative, work of speculative fiction, the first of four books, just released last week.

Instead of doing a reading, she invited me to engage her in dialogue around the work, her vision of both future and past, and how she brings her wildly diverse interests together in fiction. I like to think I'll be playing Simplicius  to her Salviatus.

I do have a lot to say about the book, but you'll have to come to her launch at 6:00 PM at 57th St. Bookstore, in Chicago, next Monday. Here's the Facebook event.

In the meantime, here's what NPR reviewer Jason Heller has to say about Too Like the Lightning.

 "One of the most maddening, majestic, ambitious novels — in any genre — in recent years."

"A thrilling feat of speculative worldbuilding, on par with those of masters like Gene Wolfe and Neal Stephenson."

See you on Monday!

Thursday, May 12, 2016

NYT has no Room for (Self-Advocates for) Debate

On Tuesday, I praised good NYT reporting on CIT training in Portland, a piece that tried to go beyond the usual platitudes. Today, I'd like to criticize their most recent Room for Debate - on mental health facilities.

The truth of a vast publication like this is that while there are overarching standards, it's made up of countless tiny little kingdoms, run with radically different visions. There is no "New York Times" to criticize, only individuals and departments (I frequently find critiques of my op-ed starting with "CNN says ..." which is pretty silly). And yet, it's a convenient short-hand.

So Room for Debate:

Image Description: Screenshot from Room for Debate: Getting the Mentally Ill Out of Jail
and Off the Streets. Accessible at this link.
The essays aren't bad. Even the pro-asylum one talks about community care and supports Olmstead. Jail diversion for people with mental illness is absolutely essential.

But where are the self-advocates? I know so many people who identify as mentally ill who speak passionately on this issue. Some are radically anti-institutional-care. Others believe well-supported inpatient, even coercive inpatient, institutions are part of a robust continuum of mental health services. It's a unconscionable that the NYT would invite six people to talk about asylums without consulting any of the many experts who have actually been forcibly institutionalized or would be threatened with institutionalization under a new asylum regime.

Side note: Recent research argues that labelling people as "The" mentally ill increases stigma - it's the definite article that does it - and yet it's consistent in NYT usage.

Ultimately, if there's room to bring in six people to talk about an issue around disability, it's reasonable to demand that at least one of them be disabled. Self-advocates and people with lived experience really aren't that hard to find, but you have to start by looking.

Tuesday, May 10, 2016

NYT on CIT (in Portland)

Every day, my news feed serves up a few stories about local police departments undergoing Crisis Intervention Team training. Yesterday was Northern Wisconsin and upstate New York. CIT is fine. It provides some good resources to police officers, who generally seem to respond well to the training. It's resolutely pathologizing, relying on a medical model of disability, focusing on on-site pseudo-diagnosis as a "mental health" case. These stories tend to be superficial and rarely look at the bigger picture of social context.

The New York Times, demonstrating why it's an important paper, recently tried to do better. Erica Goode, one of their feature reporters, published a long story on Portland, OR, and its approach to mental-health policing, published a few weeks back. It's a good piece of reporting, though of course leaves a lot out (and even unasked)

Portland PD had a bad history when it came to ugly use of force, eventually being investigated by DoJ and agreeing to a number of major reforms. The NYT piece opens with an incident of a man with a sword on a beach at midnight. In the past, departmental policy would have mandated the officers engage, and they probably would have killed him. Now, their "just walk away" policy enabled the officers to leave him there (after some hours).

My questions: What forms of community mental health supports are available to the man with the sword? Was there a way for officers to direct him to getting help, rather than criminalizing him, and was that way available 24/7? Was there a mental health professional on call to come help, or were only armed law enforcement dispatched? Remember, even armed law enforcement who specialize in mental health are NOT licensed mental health professionals, and they would not claim to be.

Erica Goode, the reporter, recognizes this, writing:
Whether the training leads to less use of force by officers, however, is still an open question: The findings of studies have been mixed, although one study to be published later this year suggests that Portland’s program, which is based on C.I.T., is having an effect. And training alone is not enough, experts say. For the approach to be effective, it needs the full backing of a police department’s leadership, continual checks on its effectiveness, and collaboration with the mental health community.
“The training is great, but it’s not magic,” said Laura Usher, coordinator of crisis intervention team training for the National Alliance on Mental Illness. “The thing that actually transforms the way the system works is when everyone gets together.”
I recently spent a few days in San Antonio, where they are trying to build systems, and am looking at other models. We also need to flip our questions around and take a social-model, cross-disability, approach.

Leroy Moore, one of the foremost activists around policing and disability (especially in the Bay Area), recently told me this: "I want us to stop asking what the police need, and start asking what the community needs."

CIT-trained officers is likely part of what the community needs, but it's very partial.

Monday, May 9, 2016

Vilissa Thompson's Black Disabled Woman Syllabus

Vilissa Thompson, over at Ramp Your Voice, has put together a "Black Disabled Woman Syllabus." It's a massive collection of links from various intersectional angles, a living document always ready to be expanded, and a fantastic resource. Thompson writes:
Over the past few weeks, I have been approached by individuals who wanted to understand the Black disabled experience, particularly the plight of Black disabled women and why our struggles matter. (The inquiries picked up when I published my“Lemonade” post last week.) I noticed a pattern from those who asked of my knowledge and personal reflections: many are ignorant of the experiences of Black Americans in general, Black women particularly, and when broken down further, Black disabled women specifically.

I decided that as someone who views herself as an “educator” within my advocacy scope, it would be fitting to create a compilation of books, essays/articles, speeches, music, and other bodies of work that accurately explains the diverse forms of Blackness that exists for Black women, and how the lives of Black disabled women meshed within that discourse.

I asked some of my incredible friends and fellow advocates for resource recommendations for this idea, and was provided a wealth of information that surpassed my hopes in establishing a “syllabus” of our intersectional experience.
Dive into the resources; read; share.

Thank you Vilissa for doing this.

Friday, May 6, 2016

A New Jim Crow: Disability and Racial Segregation in Georgia "Psychoeducational" Schools

This is a must read piece on the use of "psychoeducational" schools to segregate predominantly black children in Georgia from their peers.
At age 7, David was too much for his teachers to handle. So they decided to send him to a special program — unique to Georgia — called a psychoeducational school. He was like so many others already there: male, diagnosed with a behavioral disorder — and black.
Georgia’s public schools assign a vastly disproportionate number of African American students to psychoeducational programs, segregating them not just by disability but also by race, an investigation by The Atlanta Journal-Constitution found.
Black children form the majority at programs where teachers restrained children with dog leashes, where psychologists performed behavioral experiments on troubled students, and where chronically disruptive students spent time in solitary confinement, locked in rooms with bars over the windows. In one such room, euphemistically called a “time-out” area, a 14-year-old boy hanged himself.
Fifty-four percent of students in Georgia’s psychoeducational programs are African American, compared to 37 percent in all public schools statewide, the Journal-Constitution found. In half of the 24 programs, black enrollment exceeds 60 percent. In one, nine of every 10 students are African American.
The state and the individuals who make up the state respond differently to black behavior than to white behavior, accommodating the latter and segregating the first. There's a DoJ suit pending, because this is likely illegal under federal law.

Many of these students have complex needs requiring sophisticated supports. Some, perhaps, might need less time in mainstreamed classrooms. But these programs function as warehouses for kids no one is truly serving. Here's a quote from Mary Wood, who founded the program:
Wood stressed treatment, along with rigorous data collection that allowed her to evaluate the effectiveness of various therapies.
Over time, she said, funding decreased and priorities shifted. The programs compiled less data, and the people in charge placed less emphasis on mental health treatment.
“Behavior management, behavior control, and making sure they’re going to achieve what they’re supposed to achieve on testing” is how Wood, now retired, describes GNETS.
“The therapeutic dimension has disappeared,” she said.
The schools dispute this assessment, of course, and also denies that race plays any factor in placement.
On Sept. 18, Tonyi went to the school to meet with teachers and a behavioral specialist. Approaching David’s classroom, she said, she heard crying, then her son’s voice: “You’re hurting me, you’re hurting me.”
An aide had pinned David to the floor, Tonyi said. The woman was digging her fingernails into David’s hands, saying, “Do you understand? Do you understand? Do you understand?”
“Get your f-ing hands off him,” Tonyi yelled, and teachers called for a school police officer. Tonyi wanted to press charges against the aide, but the woman said David had thrown a timer at her.
The police officer ended up escorting Tonyi out of the building.
Regular readers of my work, including my CNN piece yesterday, know this kind of treatment happen around the nation. Abuse is a fundamental aspect of segregated education, but Georgia does seem to have specific problems.

Special education placement in Georgia, as with other states, seems to function as an element of what Michelle Alexander dubbed, "The new Jim Crow."

Thursday, May 5, 2016

More on Accessible Conferences: Pryal and "Reading Aloud"

Katie Rose Guest Pryal, one of my favorite writers on hidden disabilities, has produced some awesome work lately on accessibility. She was one of many people to write about the lack of disability content at the big Association of Writers and Writing Programs (AWP) conference, producing fabulous pieces about the nature of accessibility. Now she's got a new piece for Vitae on academic conferences and accessibility for people with psychiatric disabilities.

Conferences are these oddly performative spaces where our work, in my field anyway, lingers in the gaps between ephemeral workshops and permanent peer reviewed scholarship. It's vetted, but not really reviewed, and performed and critiqued on performance, even as in theory it's all about the ideas rather than style. They can be hotbeds of prestige culture, gossip and critiques. I think they are very important, too, especially for small-time scholars isolated from their scholarly peers.

Pryal's column is filled with important insights, but here's the one I want to highlight today. She writes:
No more shaming for reading papers aloud. This is a pet peeve of mine. Many speakers at conferences get slammed either in private (by gossips) or on social media (by what I would consider trolls) for reading their conference papers out loud on a panel.
Now, some presenters read their papers because they lack audience awareness. They read fast to cram in all of their oh-so-important ideas, or they read the paper because they just didn’t prepare well. I’m not talking about these people right now.
I’m talking about another group of presenters — the ones who read their conference papers because they have to. Many of these people read their papers in a captivating manner. They have fabulous audience awareness. But they still read.
I am in this group of readers. We read because reading, itself, is an accessibility measure for us— for a whole host of individual reasons such as anxiety or disfluency.We read because doing so makes our participation at a conference possible. It’s makes the conference accessible.
Don’t shame presenters who read their papers. Don’t tweet snarky comments with the conference hashtag, e.g., “Ugh stop reading papers already! #conference2016.” First of all, we see those tweets. Second of all, you just might be attacking someone who reads because she doesn’t have a choice.

I am a performer, most at my ease in front of a full room with a lightly scripted text, at most, from which to deliver (or hidden in my study with the blinds drawn. It's a balance of extremes). But that performance is not the why of a conference paper.

We build accessibility into our gatherings through policies, many of which Pryal details here (I offered some others in this piece I wrote for Vitae, based on interviewing a large number of scholars who identify as disabled).

But we also built accessibility by shifting our perceptions and embracing a culture that values neurodiversity, including diversity of paper delivery styles.

Finally, to Pryal's point about conference tweeting, I'm total agreement. Tweeting shifts the temporary to the permanent, so my first rule is: Tweeter, do no harm.

Wednesday, May 4, 2016

History and Memory: Richard III and Leicester City (and British Football)

So Leicester City won the British Premier League title, which is very exciting for people it excites! I noted in the preview last weekend in the New York Times that there's an interesting touch of history and nostalgia in their narrative:
April 4, 2015 Sitting in last place with nine games to go, it seems certain that the Foxes will be relegated to the second-tier Championship. Yet a week after King Richard III’s remains are reinterred in Leicester, the team beats West Ham United on a goal by a player named King (Andy, in this case). It is a harbinger, fans now say, as Leicester goes on to win seven of its final nine games and ensure its return to the Premier League.
This year's title is probably the greatest victory for Richard III in history.

Tuesday, May 3, 2016

Game of Thrones and Cultural Memes

As you likely know, I write regularly about Game of Thrones for Vice.com. I find the show interesting and often compelling. Its terrible on gender, sometimes very good on disability (because Tyrion is so well written, with Jaime also developing well post the loss of his hand), and complicated in its appropriation of medieval ideas. It's also widely popular, and popular culture is worth studying in its own right. 

(some spoilers at the end)

Here's my latest:
The ruler stood on a raised platform surveying a gathering of political foes, vanquished rivals, and professional miscreants. He scowled down at them and named his enemies in the room, calling for the guards to bar the door. As a warning, the ruler invoked a legendary night when a festive gathering, filled with food and alcohol, turned to slaughter.
In other words, over the weekend, President Obama told the gathered throng at the White House Correspondents' Dinner:
You know who you are, Republicans. In fact, I think we've got Republican Senators Tim Scott and Cory Gardner. They're in the house, which reminds me: Security, bar the doors. Judge Merrick Garland? Come on out! We're gonna do this right here, right now! It's like the Red Wedding.
It means something when lines or scenes from television jump beyond the confines of a series into popular culture. From "the truth is out there" (X-Files) to "I am the one who knocks" (Breaking Bad), the phrases resonate even if you didn't watch the show. For me, as a kid, although I never watched a minute of Dallas (a nighttime soap opera), I knew that " who shot J. R." (and "it was just a dream") would resonate as a catchphrase with pretty much everyone. In DC, I know current and former White House staffers and plenty of others for whom the "Big Block of Cheese Day" (West Wing) still is marked on their calendar. Comedies generate such lines and scenes too, from "we were on a break" (Friends) or "master of my domain" (Seinfeld is a particularly endless supplier, with other signature lines as "no soup for you" and "not that there's anything wrong with that").
And yet, in this era of peak TV, where so many excellent shows proliferate across multiple platforms, it's even more impressive when a moment from a show leaps from fan base to general cultural consciousness. That makes the achievement of the Red Wedding as a cultural touchstone (meaning surprising betrayal and slaughter) all the more impressive. The White House Correspondents' Dinner attendees surely don't all watch Game of Thrones, but everyone seemed to know what the president meant. Startled laughter rolled through the hall.
I then think about Season 6, which is the task at hand.

First - thanks to my Facebook horde who helped me brainstorm lines and scenes that have leapt from TV shows into popular culture. I'd like to do more thinking about the role played by memes in this era of peak TV.

As for GoT, I'm enjoying many things about the season, although the Ramsay Bolton issue is real (he has, as I've been saying since the Game of Theons began years ago, and restated in my "things I hate about Season 6" article, only one beat - smiling while doing the worst thing possible. We get it. He's no Joffrey). I'm so tired of Meereen and now it's trapped Tyrion and Varys, who are otherwise so delightful.

Also I think they're rushing: Jon Snow is back after only 2 episodes, Arya's blindness lasts about 6 minutes of total screen time, and in general I fear they are heading into the cliches rather than resisting them.

If the show sputters as it leaps out of the source material and prolongs the last few years, will it lose its hard-won cultural valency?

Monday, May 2, 2016

San Antonio and Mental Health

I'm flying to San Antonio today to learn more about their approach to mental health. My hope is that I'll find three things.

  1. Efforts pre-crisis to prevent people from going into mental health crisis.
  2. Policies to insure that mental health professionals have command over mental-health-crisis incidents, rather than lightly or un-trained police officers (even the 40-hr CIT training is not, for example, comparable to a 2-year degree or years of professional experience.
  3. Efforts post-crisis to provide structural care to prevent future crises.
Here's the NPR reporting on their policies.
I'm also working on a big piece about criminal justice and disability this week, so much more to come.

The material from this will be in Part IV of my book, which is coming along, if slowly.